All posts by Dave

Death is uninvited…

In the immortal words of Geto Boy’s Bushwick Bill…

“How can you be afraid of what’s bound to happen
You can’t run and try to hide from death
Death is uninvited, it’s also at a shitty time
Things can creep and snatch your ass up out your prime…”

It’s not Shakespeare but it’s understandable and as real as it gets. Now that I have your attention, I wish to share with you something that I had been thinking about for quite some time; Death and all the complications that presents for my spouse and loved ones.

A little over a year ago, I found EVERPLANS. I have used it for the past year to organize my life and legacy, before and after death. I know what it’s like to lose a loved one and I know you can relate, as devastating as it is.

Please watch and consider organizing your life. Everplans makes it easy. Check’em out.

Been a while Eh?

I have been keeping myself extremely busy and trying to not get rabbit holed with knowledge and research about MS.  I have needed a breather from the magnetic draw that FB commands.   There is a lot of “Click Bait” on FB.  The obligation to “Like” something is sometimes overwhelming.

RIP PRINCE – YOU WILL BE MISSED

Jimmy Fallon Late Night 13.03.01 – This was one of the most amazing 2 song sets (Screwdriver & Bambi) that Prince / 3rdEyeGirl did.  Bambi is featured here…

Besides the Super Bowl halftime show, this Prince performance on Jimmy Fallon truly showed his talent and stage presence.  What more can I say but watch and listen.  RIP PRINCE – You will be missed!PRINCE

Tears of Joy from the Alter-G

I got to walk SAFELY without a cane today for 10 minutes on the Alter-G treadmill made with space age technology from NASA.

I can’t remember the last time i walked 10 minutes straight without wobbling or falling.  Maybe 2010 shortly after my MS diagnosis in 2008?  MS makes exercise / elevating the heart rate a difficult task for many of the 2.5 million people fighting the chronic illness having symptoms that are as unique as a snowflake or fingerprint.

What is the Alter-G you say?  First a little history.

When Neil Armstrong landed on the moon in July of 1969 (my birthday and for whom I was given my middle name), he and Buzz Aldrin got to experience the Moon’s extremely low gravity of ~16% as compared to Earth.  The Alter-G treadmill allows the user to reduce gravity’s impact by selecting weight between 20% (only ~4% more than the Moon) and 100% of your body weight in 1% increments.  This is a true game changer for many people and reasons.  For those of us with MS it is very important to KEEP MOVING!

I urge you to investigate and try this amazing piece of equipment to:

  • Rehabilitate lower extremity injuries with less pain and less impact
  • Improve mobility, strength and safety for those with neurological conditions
  • Provide a safe way to lose weight and exercise more intensively while unweighted
  • Train without pain and reduce the stress to joints and muscles
  • Recover effectively and with less pain after training or competition

 

 

Gravity Sux and so does MS

I cant remember the last time I walked normally and without a cane. I don’t remember what it was like to workout for 45 minutes or break a good sweat.  It seems my mission in life is to keep on walking and moving as best i can without falling.
Falling and Gravity suck. I fell on Saturday (Tysabri infusion was 20hrs earlier) and it took about 30 minutes to finally get back on my feet.  Lucky it was in the bedroom on carpet and near a low bench.  I only hyper extended my pinky toe which has turned a pretty purple and hurts like a son of a bitch.   I “Googled” how to get up after falling and wanted to share this good video with you in case it could be helpful.  It has given me some good ideas that i have not tried before.  Maybe one day we will walk without falling and not need this video or a cane or a battery of medications.

Help for the Color Blind – EnChroma

I’ve known I have been color Blind since 4th grade during an in school test (if my memory serves me – Maybe 5th or 6th grade?). I remember other classmates finding out (no medical privacy back then) I was color blind and being harassed (asked) what color their Scooby Doo lunchbox was.

Color Blindness has not really affected me that I am aware of except for  Computer utilization.  You can find the test here:  http://www.enchroma.com/test/instructions/ .  Since I spend a great deal of time looking at monitors, I’ve decided to try a highly successful (80-85%) solution.  EnChroma www.enchroma.com has joined forces with Valspar (paint company) to bring special indoor and outdoor glasses to help the color blind in their #ColorForAll Campaign.

Most of their stock is either sold out or backordered 3-4 weeks.  I have ordered the EnChroma Cx Hawk and will blog about my findings.

hwkB3_c-1000x500

MS Cog Fog or just getting older?

Something occurred tonight that made me think and REMEMBER that this topic was discussed on a  thread of an MS FB group I belong to in April of 2014.  I revived it to see how many others have done something like this.
My wife found these in the fridge tonight. Now how can i forget that i set these down tonight in the fridge but i can remember the month and year of this thread? *SMH* Must be the new lesion they found my last MRI. 🙁

FridgeFloss