Category Archives: Multiple Sclerosis

Multiple Sclerosis, Tysabri

Infusion # 36 – 3 years on Tysabri

To the best of my knowledge…I have not had any relapses.  I have not gotten any better but more so have maintained a slow downward trend.

This last visit to the infusion center, extra blood was drawn for the JC Stratify Virus test.  Results are several weeks out.

They also chk that day as required by the TOUCH program other blood indicators.  Im “normal” except for my platelets which I will need to get more details.

Pending the outcome of the JC test, I will continue on Tysabri.

36th infusion

Multiple Sclerosis, Tysabri

Tysabri Infusion # 32

Today i had Infusion # 32 today.  I feel the energy starting to come back after a draining week.  Tysabri gets infused on a 28 day cycle but has a half life of +/- 14 days.  So most people I know on this drug start to feel like shit the week before their infusion date.  It’s like trying to walk through a pit of bubblegum or molasses.  That’s if you can walk.  There are plenty of other “feelings”.  We Tysabi-ans “jones” for it –but not like crack addicts.  Although I’m sure we bitch about needing it just the same.

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Multiple Sclerosis

Eye Dr today

Feeling like crap today and I’m working as diligently as possible. I’m seeing the scale move in the right direction but being tempted yet again by the snacks at work.
It’s off to the eye Dr to discuss why I can’t see shit up close now. Getting older ? Over the 40 hump? Well I am past that.