– Negative again! Tysabri continues!
Although my index went from .07 to .11 – its not a huge jump and still negative. We still don’t know if the Titer Index value plays a huge role or not. Some Dr’s seem to think so.
My 58th Tysabri infusion is scheduled for 1/16. That makes 4.5 years (58 divide by 13 infusions per year) on Tysabri.
I will have my MRI (its been about 2 years) in the next 2 weeks to check for lesion / Brain/Spine changes. HATE the MRI!
Hope for a cure, thats my wish for Christmas.
Tysabri #56. Driving and vision Test Passed!
Cooler weather is here! 5 Year Wedding anniversary next week. Driver training going well – has rained every day I’ve trained and ppl cant drive very well! They are testing me!
Trying to have fun…..
What was his name? Robert Conrad? Did the Energizer or was it Eveready Battery commercials?
Today i had Infusion # 32 today. I feel the energy starting to come back after a draining week. Tysabri gets infused on a 28 day cycle but has a half life of +/- 14 days. So most people I know on this drug start to feel like shit the week before their infusion date. It’s like trying to walk through a pit of bubblegum or molasses. That’s if you can walk. There are plenty of other “feelings”. We Tysabi-ans “jones” for it –but not like crack addicts. Although I’m sure we bitch about needing it just the same.